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Welcome to the third World Congress on Rare skin Diseases

Dear friends and colleagues,

We are very enthusiastic to organize with you the third World Congress on Rare Skin Diseases in Versailles, France, from 1 to 3 July 2026. We count on you to bring your knowledge, experience and originality! We will get together the medical teams, scientists, patient representatives, policy makers, as well as industrial teams. Our common goal is to boost the collaboration between specialists from different centrers and countries and to increase research and clinical trials in order to improve patient care and quality of life. In addition, we want to involve more and more the younger generation in the management of rare skin disorders.

The objectives of the congress are:

  • To learn on diagnosis (including pathophysiology and disease classification) and management of rare and complex skin disorders (skin cancers and aggressive tumors, autoimmune bullous diseases, complex vascular malformations and tumors, auto-inflammatory and autoimmune cutaneous disorders, toxiderma, ectodermal dysplasia and incontinentia pigmenti, DNA Repair Disorders & photosensitivity, monogenic fibrosing diseases, epidermolysis bullosa and skin fragility, epidermal differentiation disorders).
  • To develop a multidisciplinary approach and improve their skills to manage common problems in rare and complex skin disorders 
  • To know more on last research findings and tools in the field of skin biology, genetics, therapeutics 
  • To learn more on patient engagement and empowerment as well as patient education programs 

We are counting on you to join and share this adventure to improve patient care. We hope that many of you will be able to attend! See you in Versailles!

Scientific Committee

Christine BODEMER

Hôpital Necker-Enfants Malades
Paris, France

Ivona Aksentijevich

 National Human Genome Research Institute,
Bethesda, USA

Bert Callewaert

Ghent University Hospital
Ghent, Belgium

Dedee Murrell

George Hospital, University of NSW
Sydney, Australia

Pascal Joly

Centre Hospitalier Universitaire de Rouen
Rouen, France

Eli Sprecher

Tel Aviv Sourasky Medical Center & Sackler Faculty of Medicine, Tel Aviv University
Tel Aviv, Israel

Antonio Torello

Children’s Hospital del Niño Jesús
Madrid, Spain